br In terms of the quality of the relationship and
In terms of the quality of the relationship and the communication with the health personnel, although 75% of caregivers had the feeling that the medical staff knew the history of their relative, only 22% of them had the feeling that health personnel listened and took into account what they said. Moreover, 67% said they had not received help from healthcare workers in the case of having experienced lack of control, distress, or anxiety. Similarly, only 31.25% of the re-spondents had been informed of the existence of the psy-chology unit, sometimes stating that they knew about this service for the patient but not for the family.
Several previous studies have shown that the care of cancer patients hinders the organization of work, social relation-ships, leisure activities, and even self-care, causing stress and exhaustion at both the physical and psychological levels (see13, for a recent review). Although most caregivers have anxiety and depression symptoms (e.g., see7e9), as well as different physical, social, and psychological needs (e.g., see10,11), they have very few resources to address these issues (e.g., see2e4). In fact, after reviewing the current status of the aid offered by different organizations to the main caregivers of cancer patients, important shortcomings are confirmed. The resources that family members can access are often scarce and incomplete, focusing mainly on aid at a physical level, usually through respite services.
Based on a translational approach, our research provides novel empirical results that support the design of effective interventions into typical-care settings, i.e. hospitals. The ul-timate purpose is to prevent diseases and improve the quality of life of a N,N-Dimethylsphingosine with a high prevalence of unmet needs, the dependent patients' informal caregivers. In the following section, we propose some lines of intervention, derived from the results.
First, many informal caregivers reported that they needed more information about the phases that their relatives would go through during the illness and training or specific infor-mation about the care they should provide to the patient. These results are consistent with those reported by Adams et al.,14 who concluded that caregivers were more likely to have unmet needs for information about supportive care than for medical information. Therefore, an effective support pro-gram must definitely include greater access to information about the disease and the available resources for patients and their families, through different channels, such as a basic guide. Given the widespread use of the Internet today, Complex locus could also be used as a powerful support tool, through the creation of a website that contains both written and audiovisual in-formation. The results of a recent systematic review, that evaluated the availability and characteristics of instructional cancer pain management videos on YouTube, showed that most videos were directed toward a clinical audience rather than toward informal caregivers.28
Additionally, the types of care most frequently provided by informal caregivers included the following: keeping the patient company, accompanying them to health services, mediating between them and healthcare workers, helping or
performing basic activities in daily life, nursing them, listening to the concerns of the patient, and providing them with entertainment. Consequently, support programs should also include specific training of informal caregivers through workshops on the care they must provide to patients (techniques and resources), coping skills, and communica-tion skills with patients and medical staff. Personal in-teractions between caregivers, medical staff and psychologists should also be improved by increasing avail-ability and providing training, through workshops, of all medical staff.